A Stillborn Baby and the Fathers in Her Life
June 18, 2009 by Pregnancy and Infant Loss
Filed under A Mother's Thoughts, Featured Articles, Holidays & Anniversaries, Infant Death & Stillbirth
When I was a child, I prided myself on making the best homemade cards to show my parents how important they were to me. Father’s Day was probably the Big Kahuna of cardmaking for me because in the eyes of this little girl, Daddy was king. He was the one whose side I sat by for all those workbench projects, eagerly waiting to hand over a tool. And he was the one whose shoulder I cried on during the disappointments and heartbreaks of life. Somehow, Dad was always able to make it feel better and bring a smile to my face.
But 1995 would demand something different from all the fathers in my life. Just one day after a large family Father’s Day celebration which included my husband, Al-the father of our 2-year-old and another baby due that same week-my father, Terry, and my grandfather, “Papa”, our daughter Miranda was delivered stillborn, suddenly throwing the order of life upside down. How would these men respond to something so tragic and so completely out of their control?
In the hours surrounding the news of our baby’s in-utero death and her delivery, Al and I clung to each other sobbing and saying goodbye to Miranda. I had never seen him cry before and have never seen him cry since her memorial service held four days later. Although I carried her for nine months, I knew he loved her just as deeply as I did, writing this poem for Alex, our 2-year-old daughter, (something I had never known him to do) as one of the ways he struggled to come to terms with what was happening.
Usually when I walk into a room, everyone calls my name and wants to play.
Not today.
Everyone is sad.
Why is everyone so sad?
Did everyone get an “owie”?
Or maybe they have to go to bed early.
Now, that is sad.
Mommy is in a funny bed and will not hold me.
She’s not talking very loud.
She’s sad.
Why is everyone so sad?
I woke up today at Grandma & Grandpa’s house.
That was nice, but why am I here?
They’re sad.
Why is everyone so sad?
Daddy holds me extra tight and kisses me a lot.
His tears fall into my hair.
He is sad.
Why is everyone so sad?
Mommy’s tummy is not big anymore.
Where’s the baby she said was in there?
Now I’m sad.
I guess it’s okay to be sad.
My father and mother were there with me in the hospital at a critical moment as I made the difficult decision to ask for Miranda’s body to be brought to me again. “I really miss her. I didn’t get to spend enough time with her,” I cried. “Why don’t you call Candy to bring her up?” Dad said. “This might be your last chance. We’ll be here with you.”
A few minutes later, nurse Candy came in pushing a bassinet. Trembling, I watched the small round figure move towards me, wrapped in a receiving blanket and wearing a tiny white hat with a pink ball on top, just like the one Alex wore the day she was born. She warned me that Miranda was still cold, but would warm up a bit. She carefully picked her up, laid her in my arms and then slipped out of the room.
“Oh, my poor baby. Why couldn’t you have held on a little longer?” I asked her, rocking back and forth. My mom and dad sat on each side of my bed, wrapping their arms around me and Miranda. “It hurts so much,” I cried out loud. My dad hugged me tighter. “I wish I could take the hurt away, but I can’t, so I’ll just cry with you,” he said in my ear.
My Papa, always a source of upliftment and joy, was there for me at the memorial service with a smile on his face, one of his special hugs, and a twinkle in his blue eyes. After the service, as we walked down the stairs and headed for our cars, I was unaware that my 89-year-old grandfather had walked out behind me, crying uncontrollably. I had never seen Papa cry and I suppose he wanted to keep it that way.
Papa was a veteran of this thing called death. His mother died when he was six, he lived through the Great Depression, countless wars, and at his age, had buried enough family and friends to fill a cemetery; attending a funeral was a weekly event for him, yet here he was sobbing for a little baby girl he’d never laid eyes on.
Miranda would be turning fourteen this June 20th, one day before Father’s Day. Through the years, these three fathers haven’t talked about her as much as I, my daughters, and the women in my life have, but I know they hold her in their hearts.
Every year when we would sing Happy Birthday to Miranda with our three daughters, I never really knew what Al was thinking or feeling as his face intently watched the girls, but suspected he was silently communing with his fourth daughter who never got to call him Daddy or make him a Father’s Day card.
Then, a few years ago I came across a copy of a letter Al had written to a group of men he had just befriended on a Christian men’s retreat. He talked about losing his daughter Miranda, and how he never doubted that God was with him during that time, and that somehow he kept his faith. He felt that he was being called to be a strong-willed man who could offer comfort to others in need. I think he was, in his own way, acknowledging that Miranda had helped her Dad to grow and realize what he was capable of.
Sometime shortly after Miranda’s death, my dad put together a framed copy of a quote he had read in When Hello Means Goodbye, the booklet I was given in the hospital. Amidst the photos on his desk of all his grandkids sits a black 8×10 framed print that reads:
Miranda Blair Novak
June 20th 1995
Hold Close These Moments For We Shall Always Live By Remembering
He later told me that he realized early on he could not let this little girl get out of his mind and has looked at her name every day for fourteen years. Just this weekend it occurred to him to ask me for her picture so his collection of the grandkid photos would be complete.
Two years after Miranda died, my Papa made his transition from this life. Since then, several spiritual teachers have told me and my mother on separate occasions that they see a man fitting the description of my Papa holding hands with a young brown-haired girl wearing a dress. My mother has had the same dream about Papa and Miranda. And in both the visions and the dreams, the two are smiling and dancing joyfully.
Though Miranda’s physical presence was here for but a moment, the spirit of a daughter, granddaughter, and great-granddaughter lives on in the hearts of the dads who love her, and through them makes this world a better place.
Portions of this article were excerpted from The Good Grief Club: A True Story About the Power of Friendship and French Toast.
Monica Novak is the author of The Good Grief Club, a memoir about her friendships with six other women that carried them through the ups and downs of grief following the loss of their babies in miscarriage, stillbirth, and infant death. She also serves as editor of Open to Hope’s Pregnancy and Infant Loss page at www.opentohopepregnancyloss.com . For more information about her book, and for pregnancy loss and infant death resources, please visit her website at www.thegoodgriefclub.com or e-mail her at monica@thegoodgriefclub.com.
Suggestions for a Well-Deserved Mother’s and Father’s Day
May 8, 2009 by Pregnancy and Infant Loss
Filed under Featured Articles, Holidays & Anniversaries, Infant Death & Stillbirth, Miscarriage
Often times Mother’s Day and Father’s Day are two of the most difficult days for bereaved parents. Some have told me that these days are so painful that they are not able to even acknowledge it for their own mom or dad, and they celebrate with their parents on a different day. Over the years, parents have looked at me with tear-filled eyes and asked me “Am I really a parent if my baby is not here with me?”
I equate parenthood with love; the greatest kind of love. Does love stop when a baby dies? Of course not! You will always be your child/ren’s parent. No one can take this role away from you.
You may question whether you have the right to celebrate or be remembered on these days, but a parent’s love needs to be acknowledged and celebrated. If you can’t imagine joining the rest of the world in the typical activities of celebration, do something different or not at all. But also know, that even without your precious baby in your arms, you are parents and parenthood can be celebrated as you choose. Whatever you choose to do on these days, know that it is okay if it feels right to you.
The following suggestions are some ways to celebrate your parenthood on these difficult days:
* Acknowledge that you are parents.
* Be gentle with yourselves. Do only what you can handle.
*Acknowledge that this day could be difficult and determine how you can comfortably spend the day.
*Alert yourself to the most difficult challenges of the day, such as attention given to moms and dads at church. Some parents have talked to their clergy about the importance of recognizing all parents at these celebrations.
*Family gatherings may make you feel uncomfortable. Discuss this with your family and let them know that you appreciate their love and support, but that you may not be able to attend or manage your composure throughout the entire day. Assure them that these feelings will not be forever.
*Plan ahead. Waiting until the last minute can cause frustration and hurt feelings.
*Share with family and friends how they can help make your day a special one. Sometimes they need specific suggestions, such as sending you a card, flowers, or a donation to Share or another favorite charity in your baby’s name.
*Treat yourselves to a special gift, an outing, or flowers. Send each other cards for these special days.
*Remember your baby by lighting a candle, placing a rose on the alter or dinner table, or planting a tree or bush.
It is important to tell others what you need. Do not assume that everyone will be aware of how you are feeling on these days. Being aware in advance that certain situations may be difficult, such as family gatherings or church services, allows you the opportunity to plan accordingly. If you’ve been asked to do something that makes you uncomfortable, listen to your heart. For some, spending the day in bed with the covers pulled up, or on the couch watching movies, might be the right thing. Be sensitive to your own feelings and needs, and above all, know that you are parents.
Cathi Lammert, R.N., is Executive Director of the National Office of SHARE Pregnancy and Infant Loss Support, Inc. www.nationalshare.org. As a bereaved parent, Cathi combines her personal experience with her education and professional background as an obstetrical nurse. Her son, Christopher Michael lived just 4 days and died due to Hydrops Fetalis, a complication of Rh sensitization. Cathi was a guest on the radio show Healing the Grieving Heart with Dr. Gloria & Dr. Heidi Horsley, to discuss Finding Help and Hope After Pregnancy Loss. To hear Cathi being interviewed on this show, click on the following link: www.voiceamericapd.com/health/010157/horsley011509.mp3 For more information, you can e-mail Cathi at: clammert@nationalshare.org
Mother’s Day Flowers
May 4, 2009 by Pregnancy and Infant Loss
Filed under Featured Articles, Holidays & Anniversaries, Infant Death & Stillbirth, Miscarriage
It was back in 1998 that I was finally eligible to celebrate my first Mother’s Day. Our first child, Dylan, had been born in the fall of 1997 after many years of fertility issues. But when that May holiday came around, one that I had longed to be a part of, it was a bitter-sweet day. Yes, I was a mother, but now without a child. Our sweet baby lived for only two weeks in the neonatal intensive care unit and died peacefully in our arms.
I struggled that first Mother’s Day - I wanted to celebrate, I had been so happy being a mom to Dylan while I was pregnant with him and during his brief life. I wanted to honor our mother-son relationship, even though the pain from the loss was still palpable.
I recalled how others had supported us and what I found comforting. Family and friends had given us numerous plants, bushes, and flowers in memory of Dylan which were growing outside in our front and back yards. It’s an understatement that I do not have a green thumb, so I welcomed the beautiful daffodils, crocus, azalea and butterfly bushes that were now blooming. I loved being outdoors and admiring Mother Nature’s miracles. With Dylan’s birth and death occurring only weeks from each other, being reminded of the circle of life connected with me.
So, on my first Mother’s Day I started what has become an annual ritual: planting flowers (usually hardy geraniums) in clay pots that adorn our back deck. Getting my hands into the dirt and helping these flowers take root and thrive continue to be healing as I reflect upon how Dylan nourished my soul and helped me become a mom.
There were many tears as I planted flowers those first Mother’s Days. But it always brought me such joy to see the fruits of my labors as the spring unfolded into summer and fall, and as I watched hummingbirds gather nectar from these flowers.
Now, many years later and mother to 7-year old Tyler, this Mother’s Day I will once again be out on our deck planting flowers - proudly and gratefully remembering all our children.
Beth Seyda’s life was transformed in 1997 with the birth and death of her critically ill newborn son, Dylan. She combines her 25+ years of professional experience in consumer research with her personal experience as Co-Founder and Executive Director of Compassionate Passages, Inc. The mission of her non-profit organization is to give a voice to pediatric patients and their families through advocacy, education, and research with the goal of improving pediatric end-of-life care and providing support to dying children and their families. Compassionate Passages donates the book Empty Cradle, Broken Heart: Surviving the Death of Your Baby to bereaved families.
Beth lives in Chapel Hill, N.C., with her husband, Mark, and their 7-year old son, Tyler. To learn more about Beth’s non-profit organization, go to: www.compassionatepassages.org
How Will You Remember Your Loved One?
April 6, 2009 by Pregnancy and Infant Loss
Filed under Featured Articles, Grief & Loss, Holidays & Anniversaries
by Carol O’Dell -
We avoid thinking about or dealing with death at every turn. Even caregivers who are caring for their aging parents try not to think about the inevitable end. Cancer, Alzheimer’s, heart disease, stroke, diabetes, combined with age will eventually claim the lives of those we love. And sadly, by not fully anticipating and participating in this momentous event, we’re left scared, in doubt, and not knowing how to die-or be with someone we love when the time comes.
Who will teach us? How will we learn?
I recently interviewed Rachel, a young mother in my community who experienced a tragedy-she lost her two year old little boy, Tyler, in a swimming pool accident.
As I sat with Rachel and listened to her story, I immediately sensed she had wisdom and insight well beyond her years. She’s handled grief with grace, forgiveness, and determination. My own worries seemed insignificant.
Rachel’s story got me to thinking. How will we remember our loved ones? What memorial, statue, headstone or story will honor those who have touched our lives?
While I have nothing against cremation, sometimes people need a place to go-it’s important to create a sanctuary or sorts-a place to be, to pray, to think and meditate. A place to remember.
My Daddy is buried in Atlanta, and so this Father’s Day, I’ve had to create a new place for “us” to meet and talk.
I like to spend a few minutes catching up with my daddy about my life. I have a bench overlooking a lake in my backyard. He would have liked it here. He loved to sit outside and talk. That’s where I’m headed this Sunday.
I’m including an article I recently wrote about Rachel and a place of remembrance for all those who have lost someone they love. As you read her remarkable story, I’m sure you’ll agree-we can all learn from her-how to love, and how to hope again.
Angels Among Us
There’s an angel on Amelia Island. The childlike face lifts toward the sky, arms outstretched as though holding something invisible, and bronzed wings gleam against the stark Florida sun. The inscription at the bottom of the statue reads, “Angel of Hope.” It is encircled by a short brick wall and eight benches for seating with a loved one’s name on each one. I found this “Angel of Hope” one afternoon on a photography/bike trek around the island.
I stopped to take a picture and began to read the inscription on the back of the statue: “The Christmas Box Angel,” and I thought of Richard Paul Evans’ book, The Christmas Box, about a woman who mourns the loss of her child and finds comfort at the base of an angel monument.
At the base of the angel I read, “For all the children” and began to put it together-the benches, the names, the stones lined up at the base, the bouquet of flowers indicating someone had been here.
This angel is a place of remembrance for families who have lost a child. It’s a sacred gift given by other bereaved parents and is available to anyone who would like to come, sit, and remember.
I thought of Tyler, a purely sweet loving laid-back two-year old with beautiful big brown eyes, the son of Rachel and Patrick Pennewell. I remembered the day I found out Tyler had suffered a swimming pool accident.
Rachel, his mother told me, “Tyler was our angel. He had a purpose in being here. Sometimes I would just look at him. He was such a calm, knowing soul, and I’d wonder, you know something, don’t you? Some things he understood here on earth.”
After Tyler’s passing, Rachel and Patrick found the community of Nassau to be their angels who sustained them in those early weeks and months when shock turned to grief.
“I’ll never be able to thank the people at our church and in our community for all they did. How can I ever show them what this meant to us?”
Rachel said it’s so important for bereaved parents to find ways to give back because, “What else can we do? You don’t stop being a parent. You have to find a way to give, and in that giving, your child lives on.”
I asked Rachel how she got to a place of peace.
“Tyler’s life completely transformed the way I saw myself, and that lives on today. He brought such peace into my life, from the moment of conception on; it was as if he had a mission. Patrick and I now have a second child, Hannah, Tyler’s little sister. I promise, Tyler helped pick her out. In so many ways, he’s still with us. He’ll always be with us.”
As I stand in this circle and read the names on each of the benches that surround this angel, I wonder who each one of them are, what their stories are, because it’s our stories that connect us-not the how did-he-die stories-but the deeper question: how did he live?
This Amelia angel creates a circle of hope; the hope and belief that each child’s life, no matter how short of a time they spent on earth, is a gift. If you look closely at the angel’s right wing, you will see the word “hope.”
The golden moments in the stream of life rush past us
and we see nothing but sand;
the angels come to visit us,
and we only know them when they are gone.
~George Elliot
Christmas Box Angels are erected in more than 25 other communities around the world. http://www.richardpaulevans.com/statue.html
If you’d like to view a photograph of this statue, it’s posted on my website at http://home.comcast.net/~cdodell/ (www.mothering-mother.com) on the Caregiving Tips page.
Author of Mothering Mother: A Daughter’s Humorous and Heartbreaking Memoir available on Amazon
New Year Offers a Chance to Start Fresh
January 6, 2009 by The Grief Blog
Filed under Grief & Loss, Holidays & Anniversaries
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By Mary Jane Hurley Brant –
When we have lost someone we love we want to feel some hope again. I have faith in the healing process and I welcome 2009 with open arms and yes, hope for healing, too.
But I’m not just hoping. I’ve done my homework too. I’ve reflected back on the previous year and absorbed the lessons that it had to offer. Mythological history offers us advice in that regard. For example, look at Janus, the Roman god of beginnings. He had a psychological mind-set that allowed him to look both backwards and forwards at the same time.
Can we do that after loss? Yes, we absolutely can; we can take the information learned from the previous year of living with loss, integrate it to become more conscious, and subsequently grow and evolve in body, mind and spirit.
Let me offer you, my friends, some ways to greet 2009 with renewed compassion and hope after loss for your body, your mind and your spirit.
For Your Body ~
First let’s have a definition of compassion. It is simply an awareness of ours or another’s suffering and the willingness to work toward alleviating it. Have you treated your body with compassion? If in the previous year you starved yourself or feed yourself more salt, sugar, fat and alcohol than your body needed, you have an opportunity to rectify that now. I like to ask myself, compassionately, “What are you really hungry for MJ; what are you really starving for?” If it’s love, I seek loving people to connect with: those people who are affectionate in speech, touch and behavior. If I’m hungry for laughter, I seek funny, witty people so I can laugh and play, too. If I need intellectual food, I find those others who also enjoy that source of nourishment.
Also ask yourself if you are giving your body the proper rest it needs to repair and rejuvenate, particularly when you have suffered the loss of someone that you love. Be mindful of overworking your body; it is your temple.
For Your Mind~
Have you treated your mind with compassion? When others ask you to do something that you don’t want to do, how often do you say “yes,” then feel resentful afterward? How about if you always say “no” no matter what someone asks of you, and then wonder why no one calls you anymore?
After a loss, this is particularly important to pay attention to. Compassion for your mind is opening up your thinking to new ways of being, new ways of responding to others. This is where the Janus looking back helps because if you were raised with many restrictions, you may fall into saying no more often than responding yes. On the other hand, those raised to please everyone often automatically respond with a yes response which will eventually burn you out and your body is already tired after you have experienced a loss.
Also, when you have lost a loved one, or your job, or your health, or your closest relationship, or the loss of the life you thought that you would have, this time of year can be more painful and lonely. Now is the right time to extend the hand of compassion to your beautiful mind by touching it with the words of sages and saints, the biographies of inspirational people, the Bible, the Torah, the Koran, the Bhagavad-Gita, and the Buddha-Dharma. Or consider watching programs and movies about those souls who have met overwhelming adversary and treated that imposter no different than they would treat a friend.
For Your Spirit~
Have you treated your spirit with compassion? Reflect now, for in this New Year your spirit is searching more overtly for answers so indulge your seeker self. Walk a labyrinth, a beautiful figuration and a sacred pathway. As you walk, pray, breathe, meditate.
When we have had a loss, we need to ask ourselves what loving or knowing this other person gave to us. That’s reflective; that’s looking back. In this way you will be as Janus and this thoughtful exercise will enable you to look toward your future with some hope. I regard everyone and every situation in my life as a teacher - positive or negative. It has helped me to learn what to be and what not to be in this regard. It has shown me that most people do the best that they can given their experiences, their genes, their consciousness, and their personal gifts. It has also taught me the value of being grateful for everything that I have.
So as 2009 begins, remember Janus! Remember to look backward because it will assist you in looking forward and bring deeper meaning to your life. It will absolutely give you another chance to begin anew and make every day matter.
Mary Jane Hurley Brant, M.S.,CGP is a practicing psychotherapist for 29 years available in person or by telephone. Her book, When Every Day Matters: A Mother’s Memoir on Love, Loss and Life (Simple Abundance Press, Oct. 2008) is available at her website www.WhenEveryDayMatters.com or on http://www.Amazon.com
This article first appeared on http://www.opentohope.com
How to Survive the Holidays - Tips For Grievers
December 22, 2008 by The Grief Blog
Filed under Holidays & Anniversaries
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Five Tips For Grievers During the Holidays
December 16, 2008 by The Grief Blog
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Managing Holiday Grief & Loss
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